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EM TopicsEnd-of-life and goals of care

EM · End-of-life and goals of care

End-of-life care and goals-of-care discussions in the emergency department

Also known as Goals-of-care conversation · Not for resuscitation · DNAR · Treatment limitation · Palliative care in the ED · Advance care planning

End-of-life care and goals-of-care discussions in the emergency department — recognising the dying patient across the illness trajectories, the structured goals-of-care conversation (framing, the patient's values, realistic outcomes, and the shared decision), the not-for-resuscitation order and limitation of treatment (not for intubation, CPR, dialysis), the ED palliative pathway with its symptom-control pharmacology (morphine 2.5 mg SC/IV, midazolam 2.5 mg SC, glycopyrrolate 200 micrograms SC, haloperidol 0.5 to 2 mg IV), the family meeting, bereavement support, cultural and spiritual considerations, and the legal and ethical framework of the advance care directive, the enduring guardian and substituted judgement. The differential — the reversible causes of deterioration that must not be missed — runs through every decision. ACEM-primary, globally tagged.

high12 referencesUpdated 26 July 202614 min readVerification in progress

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Target exams

ACEMFRCEMABEMFRCPCCCFPEMEBEEM

Red flags

  • A patient who appears to be dying may have a reversible cause — hypoglycaemia, opioid toxicity, hyperkalaemia, sepsis, or a tamponade — that comfort care would bury; the reversible differential is excluded before a comfort-only plan is fixed
  • An advance care directive refusing cardiopulmonary resuscitation carries legal force and overrides a family request to do everything — perform to the directive, not the loudest voice in the room
  • The 'slow code' is not an acceptable compromise — a not-for-resuscitation decision is a clear, communicated order; ambiguity harms the patient, the team, and the survivor bereavement
  • Withholding proportionate morphine from a breathless dying patient from fear of hastening death is unethical — the doctrine of double effect protects symptom control when intent is comfort and dose is proportionate
  • Framing a not-for-resuscitation order as 'doing nothing' is the single commonest error — it is reframed as an active plan to focus entirely on comfort, dignity and the things that matter to the patient
On this page

Related topics

  • Breaking bad news and communication in the emergency department — the SPIKES framework
  • Shock states — the recognition and the approach
  • Recognition of deterioration: track-and-trigger and early-warning scores
  • Coma and GCS assessment
  • Acute decompensated heart failure and cardiogenic pulmonary oedema
Study tools

Your progress

Saved on this device.

Practise this topic8 MCQs with explanations

Target exams

ACEMFRCEMABEMFRCPCCCFPEMEBEEM

Red flags

  • A patient who appears to be dying may have a reversible cause — hypoglycaemia, opioid toxicity, hyperkalaemia, sepsis, or a tamponade — that comfort care would bury; the reversible differential is excluded before a comfort-only plan is fixed
  • An advance care directive refusing cardiopulmonary resuscitation carries legal force and overrides a family request to do everything — perform to the directive, not the loudest voice in the room
  • The 'slow code' is not an acceptable compromise — a not-for-resuscitation decision is a clear, communicated order; ambiguity harms the patient, the team, and the survivor bereavement
  • Withholding proportionate morphine from a breathless dying patient from fear of hastening death is unethical — the doctrine of double effect protects symptom control when intent is comfort and dose is proportionate
  • Framing a not-for-resuscitation order as 'doing nothing' is the single commonest error — it is reframed as an active plan to focus entirely on comfort, dignity and the things that matter to the patient
The one-line answer

End-of-life care in the ED is an active competence, not the failure of resuscitation: recognise the dying patient, exclude the reversible mimics, hold the structured goals-of-care conversation, limit treatment to what can meet the patient's goals, and control symptoms promptly under the doctrine of double effect. The DNAR order is reframed as a comfort plan — never as "doing nothing".[1][2][3]

Meet the patient

An 84-year-old woman reaches resus from a nursing home: three days of drowsiness, a low-grade fever, GCS 11, mottled legs, SpO2 88 per cent on room air. Advanced dementia, heart failure, stage 4 kidney disease, recurrent aspiration. Her daughter, just off a plane, is distraught: "You have to do everything."[1][2]

This is the Fellowship OSCE stem that separates the registrar from the consultant. Before you decide anything, you hold the conversation and you exclude the reversible — and only then does a comfort plan become ethically secure.[2][3]

Emergency Medicine Pro

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You have read the opening of this topic. The complete unit — every section and its primary-source references — is part of the Emergency Medicine fellowship library.

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References12ShowHide
  1. [1]Paladino J, Bernacki R, Neville BA, et al. Evaluating an Intervention to Improve Communication Between Oncology Clinicians and Patients With Life-Limiting Cancer: A Cluster Randomized Clinical Trial of the Serious Illness Care Program. JAMA Oncology, 2019.PMID 30870556
  2. [2]Loffredo AJ, Chan GK, Wang DH, et al. United States Best Practice Guidelines for Primary Palliative Care in the Emergency Department. Annals of Emergency Medicine, 2021.PMID 34353647
  3. [3]Makarem RA, Patil S, Baniowdeh O, et al. The principle of double effect in palliative care: a systematic review of ethical, legal, and clinical perspectives. BMC Palliative Care, 2026.PMID 42185809
  4. [4]Baile WF, Buckman R, Lenzi R, et al. SPIKES-A six-step protocol for delivering bad news: application to the patient with cancer. Oncologist, 2000.PMID 10964998
  5. [5]Lunney JR, Lynn J, Foley DJ, et al. Patterns of functional decline at the end of life. JAMA, 2003.PMID 12746362
  6. [6]Harris D. Safe and effective prescribing for symptom management in palliative care. Br J Hosp Med (Lond), 2019.PMID 31822173
  7. [7]Coyle S, Sinden R, Wignall-Coyle J, et al. Continuous subcutaneous infusion: is community anticipatory prescribing and administration safe? BMJ Support Palliat Care, 2024.PMID 34815249
  8. [8]Taburee W, Dhippayom T, Nagaviroj K, et al. Effects of anticholinergics on death rattle: a systematic review and network meta-analysis. J Palliat Med, 2023.PMID 36194053
  9. [9]Bausewein C, Holland AE, Romero L, et al. Airflow for reducing breathlessness in people with serious respiratory illness: a systematic review. ERJ Open Res, 2026.PMID 41878280
  10. [10]Fontenot T, Grisel B, Freeman J, et al. Ethical implications of the slow code: a systematic review of ethics of slow codes in U.S. hospitals. Crit Care Med, 2026.PMID 42339875
  11. [11]Sultanoğlu H, Köken AH, Topçu İ, et al. The ethical and clinical conflict of cardiopulmonary resuscitation (CPR) in the emergency department: futile interventions. BMC Med Ethics, 2026.PMID 42177508
  12. [12]Watanabe K, Tochimura K, Fujita H, et al. Bedside neurological signs of impending death in terminal cancer patients receiving home hospice care. Am J Hosp Palliat Care, 2026.PMID 42473136

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Related topics

  • Breaking bad news and communication in the emergency department — the SPIKES framework
  • Shock states — the recognition and the approach
  • Recognition of deterioration: track-and-trigger and early-warning scores
  • Coma and GCS assessment
  • Acute decompensated heart failure and cardiogenic pulmonary oedema