Paeds · clinical-assessment-and-reasoning
Care of children with medical complexity and technology dependence
Also known as Children with medical complexity · CMC · Technology-dependent children · Complex chronic conditions · Pediatric medical complexity algorithm · PMCA · Complex care · Medical home for CMC
Fellowship approach to children with medical complexity and technology dependence: Cohen and Kuo definitions, PMCA and CCC identification tools, baseline-aware assessment, device versus disease deterioration, emergency care plans, care coordination, caregiver support, discharge, transition and exam-ready reasoning.
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Target exams
Red flags
- Change from the child’s personal baseline interaction, work of breathing, colour, seizures or feeds
- Possible device failure: tracheostomy obstruction or dislodgement, ventilator disconnect, pump failure, oxygen off, line problem
- Caregiver concern that the child is getting worse, even if numbers look near baseline
- Fever or lethargy in a central-line or TPN-dependent child
- Diagnostic overshadowing: every symptom blamed on the known diagnosis
- Unsafe discharge without supplies, trained caregivers, emergency plan or follow-up contact
- Caregiver crisis, missed safeguarding cues, or discrimination delaying escalation because the child is ‘always complex’
Life stages
Care settings
Clinical exam formats
Board mappings
- General and Community Paediatrics
- Current 2026 PREP curriculum — Learning Objective related to chronic complex care and disability
- Renewed curriculum for first-year trainees from 2027 — Learning goal 5: Clinical assessment – essential general paediatrics
- Renewed curriculum for first-year trainees from 2027 — Learning goal 6: Clinical management – essential general paediatrics
- Renewed curriculum for first-year trainees from 2027 — Learning goal 10: Clinical assessment and management – developmental and behavioural paediatrics
- Renewed curriculum for first-year trainees from 2027 — Learning goal 12: Communication with patients, families, and health professionals
- Renewed curriculum for first-year trainees from 2027 — Learning goal 14: Regional, rural, and remote paediatric care
- Renewed curriculum for first-year trainees from 2027 — Learning goal 15: Essential general paediatrics
- Clinical Applications
- Long Cases
- Short Cases
- 2. Professional skills and knowledge: Communication
- 4. Professional skills and knowledge: Patient management
- 6. Leadership and team working
- 7. Patient safety, including safe prescribing
- Health promotion and illness prevention
- General Paediatrics: Coordinates care for children and young people with complex needs
- Foundation of Practice (FOP)
- Theory and Science (TAS)
- Applied Knowledge in Practice (AKP)
- Clinical
- History
- Communication
- General Pediatrics Content Outline — Domain 1: Preventive Pediatrics/Well-Child Care
- General Pediatrics Content Outline — Domain related to chronic disease, disability and complex care
- General Pediatrics Content Outline — Domain 24: Patient Safety, Quality Improvement, and Research Methods
- General Pediatrics EPA: Provide a medical home for patients with complex, chronic, or special health care needs
- General Pediatrics EPA 8: Executing Clinical Handovers Within or Across Settings
- General Pediatrics EPA 10: Leading Interprofessional Teams to Provide Collaborative, Family-Centered Care
- Patient Care 3: Organize and Prioritize Patient Care
- Patient Care 4: Clinical Reasoning
- Patient Care 5: Patient Management
- Systems-Based Practice 1: Patient Safety
- Systems-Based Practice 3: System Navigation for Patient Centered Care – Coordination of Care
- Systems-Based Practice 4: System Navigation for Patient-Centered Care – Transitions in Care
- Interpersonal and Communication Skills 1: Patient- and Family-Centered Communication
- Interpersonal and Communication Skills 2: Interprofessional and Team Communication
- Medical Expert
- Pediatrics: Core EPA #11 — Coordinating transitions of care for patients with medical or psychosocial complexity
- Pediatrics: Foundations EPA #8 — Communicating assessment findings and management plans to patients and/or families
- Pediatrics: Foundations EPA #10 — Transferring clinical information between health care providers during handover
- Pediatrics: Core EPA #10 — Leading discussions with patients, families and/or other health care professionals in emotionally charged situations
Overview & Definition
Picture a school-age child who lives with a tracheostomy, overnight home ventilation, a gastrostomy and five specialty clinics. The family knows the usual colour, usual secretions and usual smile. Tonight the child is quieter, secretions are thicker, and the ventilator is alarming. That child is not “a bit complex for the ED.” That child is the centre of a whole care system, and your job is to recognise medical complexity, protect life-supporting technology, and coordinate what happens next. [1]
Children with medical complexity (CMC) are a subset of children with special health care needs. Cohen and colleagues framed CMC around four linked domains: chronic conditions that are often multi-system, functional limitations that are often severe and may need technology, high health-care use across settings, and substantial family-identified service needs. Kuo and the AAP Council on Children with Disabilities then gave clinicians a practical recognition-and-management report: identify complexity early, partner with families, build care coordination, and plan across the life course. [1]
Technology dependence means the child needs a medical device to compensate for loss of a vital body function, and interruption of that technology can cause serious harm or death. Common classes include airway and ventilation supports, enteral or parenteral nutrition access, vascular access, renal replacement, cerebrospinal fluid shunts and continuous monitoring. Not every CMC child is technology-dependent, and not every technology-dependent child has the same functional profile — but the acute risk profile changes the moment a device can fail. [1]
State a problem representation the way you would hand over on the phone: age and diagnoses that matter today; personal baseline; devices and settings; what changed; whether the threat looks like disease, device failure or both; what the emergency care plan says; and what help you need now. [1]
References20ShowHide
- [1]Kuo DZ, Houtrow AJ Recognition and Management of Medical Complexity. Pediatrics, 2016.PMID 27940731
- [2]Cohen E, Kuo DZ, Agrawal R, et al. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics, 2011.PMID 21339266
- [3]Simon TD, Cawthon ML, Stanford S, et al. Pediatric medical complexity algorithm: a new method to stratify children by medical complexity. Pediatrics, 2014.PMID 24819580
- [4]Simon TD, Haaland W, Hawley K, et al. Development and Validation of the Pediatric Medical Complexity Algorithm (PMCA) Version 3.0. Academic pediatrics, 2018.PMID 29496546
- [5]Feudtner C, Feinstein JA, Zhong W, et al. Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation. BMC pediatrics, 2014.PMID 25102958
- [6]Feinstein JA, Hall M, Davidson A, et al. Pediatric Complex Chronic Condition System Version 3. JAMA network open, 2024.PMID 39008301
- [7]Berry JG, Hall M, Hall DE, et al. Inpatient growth and resource use in 28 children's hospitals: a longitudinal, multi-institutional study. JAMA pediatrics, 2013.PMID 23266509
- [8]Kuo DZ, Cohen E, Agrawal R, et al. A national profile of caregiver challenges among more medically complex children with special health care needs. Archives of pediatrics & adolescent medicine, 2011.PMID 22065182
- [9]Cohen E, Berry JG, Sanders L, et al. Status Complexicus? The Emergence of Pediatric Complex Care. Pediatrics, 2018.PMID 29496971
- [10]Kuo DZ The Medical Home for Children with Medical Complexity: Back to Basics. The Journal of pediatrics, 2019.PMID 30553538
- [11]Dewan T, Cohen E Children with medical complexity in Canada. Paediatrics & child health, 2013.PMID 24497777
- [12]de Banate MA, Maypole J, Sadof M Care coordination for children with medical complexity. Current opinion in pediatrics, 2019.PMID 31290774
- [13]Natesan A, Behar S Technology-Dependent Children. Emergency medicine clinics of North America, 2021.PMID 34215407
- [14]Barton HJ, Coller RJ, Loganathar S, et al. Medical Device Workarounds in Providing Care for Children With Medical Complexity in the Home. Pediatrics, 2021.PMID 33926988
- [15]Bayer ND, Wang H, Yu JA, et al. A National Mental Health Profile of Parents of Children With Medical Complexity. Pediatrics, 2021.PMID 34155129
- [16]Starmer AJ, Spector ND, Srivastava R, et al. Changes in medical errors after implementation of a handoff program. The New England journal of medicine, 2014.PMID 25372088
- [17]Feinstein JA, Orth LE Making Polypharmacy Safer for Children with Medical Complexity. The Journal of pediatrics, 2023.PMID 36252865
- [18]Cook S, Mauskar S, Berry JG Discriminating Against Children With Medical Complexity. Pediatrics, 2023.PMID 37357723
- [19]Sobotka SA, Hall DE, Thurm C, et al. Home Health Care Utilization in Children With Medicaid. Pediatrics, 2022.PMID 35028664
- [20]Mauskar S, Ngo T, Haskell H, et al. In their own words: Safety and quality perspectives from families of hospitalized children with medical complexity. Journal of hospital medicine, 2023.PMID 37559415