Chronic disease self-management in young people

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Target exams

Red flags

• Rapidly rising HbA1c, ketones, or a presentation in diabetic ketoacidosis — acute crisis that supersedes the self-management conversation
• Escalating reliever reliance, nocturnal waking or a severe asthma exacerbation signalling loss of control
• Acute chest syndrome, severe pain crisis or splenic sequestration in sickle cell disease
• Rising creatinine, falling tacrolimus level or suspected graft rejection after transplant
• Disclosure of suicidality, self-harm or acute psychosis — a mental-health emergency that overrides the chronic-disease plan
• Loss to follow-up after paediatric discharge with no adult appointment secured — the transfer cliff
• Covert non-adherence: perfect self-report against objectively poor control and empty refill records

Life stages

Care settings

Clinical exam formats

Board mappings

• General and Community Paediatrics
• Adolescent and Young Adult Medicine — chronic illness and self-management
• Long-term conditions: coordination of care and the medical home
• Current 2026 PREP curriculum — Learning Objective 1.2.1: Communicate with a child or young person in a way which is appropriate to the position of that child within their own culture
• Current 2026 PREP curriculum — Learning Objective: Support self-management and adherence in young people with chronic disease
• Renewed curriculum for first-year trainees from 2027 — Learning goal 15: Essential general paediatrics
• Renewed curriculum for first-year trainees from 2027 — Learning goal 12: Communication with patients, families, and health professionals
• Adolescent and Young Adult Medicine — self-management, adherence and the transition years
• Clinical Applications
• Chronic disease management, adherence and self-management support in adolescents
• Long Cases
• Short Cases
• Communication stations
• 2. Professional skills and knowledge: Communication
• 4. Long-term conditions: Self-management, adherence and supported transition
• 11. Adolescent health
• General Paediatrics: Supports young people to self-manage long-term conditions using shared decision-making, motivational interviewing and structured transition
• Foundation of Practice (FOP)
• Applied Knowledge in Practice (AKP)
• Chronic and complex paediatric conditions; adolescent health and self-management
• Communication
• History
• Clinical
• Development
• General Pediatrics Content Outline — Domain 1: Preventive Pediatrics/Well-Child Care
• General Pediatrics Content Outline — Domain 11: Adolescent Medicine
• General Pediatrics Content Outline — Domain 10: Chronic Disabling Conditions
• General Pediatrics EPA 1: Providing well-child and adolescent care including self-management support
• Patient Care 5: Patient Management
• Interpersonal and Communication Skills 1: Patient- and Family-Centered Communication
• Systems-Based Practice 3: System Navigation for Patient Centered Care – Coordination of Care
• Practice-Based Learning and Improvement 2: Self-guided learning and partnership with families in chronic disease
• Collaborator
• Health Advocate
• Scholar
• Pediatrics: Core EPA — Coordinating transitions of care and supporting self-management for patients with chronic disease
• Development, Behaviour and Mental Health: adolescent adherence and transition