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Paeds Casespain-palliative-and-end-of-life-care

Paeds Cases · pain-palliative-and-end-of-life-care

Hold the goals-of-care conversation for withholding and withdrawing life-sustaining treatment — OSCE

OSCE communication station for withholding and withdrawing life-sustaining treatment: open the conversation, explore understanding, make a clear recommendation, address fear of abandonment, and agree a documented plan.

osce communication and shared decision-making1 min readVerification in progress

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
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Study tools

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
A six-month-old infant with severe hypoxic-ischaemic encephalopathy remains ventilator-dependent after a catastrophic out-of-hospital arrest. The intensive-care team judges that continued invasive support is not in the child's best interests; the parents ask that "everything be done".

Candidate brief

You have eight minutes to open a goals-of-care conversation with the family in this scenario. Explore their understanding, hopes and worries; explain the clinical recommendation in plain language; address fear of abandonment; and agree next steps including documentation and support. [1][2]

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You have read the opening of this case. The complete unit — every section and its primary-source references — is part of the Paediatrics Fellowship fellowship library.

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References4ShowHide
  1. [1]Larcher V et al. Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child, 2015.PMID 25802250
  2. [2]Himelstein BP et al. Pediatric palliative care. N Engl J Med, 2004.PMID 15103002
  3. [3]Dworetz AR et al. Withholding or withdrawing life-sustaining treatment in extremely low gestational age neonates. Arch Dis Child Fetal Neonatal Ed, 2021.PMID 33082153
  4. [4]Gillam L et al. How Could Parents' Reasons Shift a Refusal of Treatment into the Zone of Parental Discretion?. Am J Bioeth, 2025.PMID 41108243
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PreviousHold the goals-of-care conversation for palliative care in neurodisability and genetic disease — OSCEpain-palliative-and-end-of-life-careNextIntroduce paediatric palliative care and refer at diagnosis — OSCEpain-palliative-and-end-of-life-care