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Paeds Casespain-palliative-and-end-of-life-care

Paeds Cases · pain-palliative-and-end-of-life-care

Introduce paediatric palliative care and refer at diagnosis — OSCE

OSCE communication and decision-making station: introduce paediatric palliative care to the parents of a 6-year-old newly diagnosed with relapsed high-risk neuroblastoma, correct the misconception that palliative care means giving up, explain the parallel-care model and the four domains of suffering, and outline the referral pathway and bereavement follow-through.

communication and decision-making station3 min readVerification in progress

Target exams

RACP DCEMRCPCH ClinicalRCPSC PediatricsABP General Pediatrics
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Target exams

RACP DCEMRCPCH ClinicalRCPSC PediatricsABP General Pediatrics
Prompt
A 6-year-old boy has just been diagnosed with relapsed high-risk neuroblastoma. The oncology team plans further intensive treatment. You are the general paediatric registrar seeing the family on the ward the day after the relapse diagnosis. The parents have heard the word 'palliative' and are frightened it means the team is giving up on their son. They ask whether palliative care means stopping treatment, what it will involve, and what will happen to him. You are asked to introduce palliative care, correct the misconception, explain the plan, and refer.

Candidate brief

You have this station to introduce paediatric palliative care to the parents of a 6-year-old newly diagnosed with relapsed high-risk neuroblastoma, correct the misconception that palliative care means giving up, explain the parallel-care model and what the team will do, and make the referral. Treat this as a communication and decision-making encounter: acknowledge the family's fear, reframe palliative care as an added layer that runs alongside cancer treatment, name the four domains of suffering, and demonstrate that the palliative referral and any resuscitation decision are separate. [4] [5]

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References6ShowHide
  1. [1]Wolfe J, Grier HE, Klar N, et al Symptoms and suffering at the end of life in children with cancer. N Engl J Med, 2000.PMID 10655532
  2. [2]Wolfe J, Hammel JF, Edwards KE, et al Easing of suffering in children with cancer at the end of life: is care changing? J Clin Oncol, 2008.PMID 18375901
  3. [4]Section on Hospice and Palliative Medicine and Committee on Hospital Care Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations. Pediatrics, 2013.PMID 28448256
  4. [5]Himelstein BP Palliative care for infants, children, adolescents, and their families. J Palliat Med, 2006.PMID 16430356
  5. [10]Shaw KL, Brook L, Mpundu-Kaambwa C, et al. The Spectrum of Children's Palliative Care Needs: a classification framework for children with life-limiting or life-threatening conditions. BMJ Support Palliat Care, 2015.PMID 24644200
  6. [11]Bluebond-Langner M, Beecham E, Candy B, et al Preferred place of death for children and young people with life-limiting and life-threatening conditions: a systematic review of the literature and recommendations for future inquiry and policy. Palliat Med, 2013.PMID 23612958
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