Paeds Cases · pain-palliative-and-end-of-life-care
Introduce paediatric palliative care and refer at diagnosis — OSCE
OSCE communication and decision-making station: introduce paediatric palliative care to the parents of a 6-year-old newly diagnosed with relapsed high-risk neuroblastoma, correct the misconception that palliative care means giving up, explain the parallel-care model and the four domains of suffering, and outline the referral pathway and bereavement follow-through.
On this page
Study tools
Target exams
Candidate brief
You have this station to introduce paediatric palliative care to the parents of a 6-year-old newly diagnosed with relapsed high-risk neuroblastoma, correct the misconception that palliative care means giving up, explain the parallel-care model and what the team will do, and make the referral. Treat this as a communication and decision-making encounter: acknowledge the family's fear, reframe palliative care as an added layer that runs alongside cancer treatment, name the four domains of suffering, and demonstrate that the palliative referral and any resuscitation decision are separate. [4] [5]
References6ShowHide
- [1]Wolfe J, Grier HE, Klar N, et al Symptoms and suffering at the end of life in children with cancer. N Engl J Med, 2000.PMID 10655532
- [2]Wolfe J, Hammel JF, Edwards KE, et al Easing of suffering in children with cancer at the end of life: is care changing? J Clin Oncol, 2008.PMID 18375901
- [4]Section on Hospice and Palliative Medicine and Committee on Hospital Care Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations. Pediatrics, 2013.PMID 28448256
- [5]Himelstein BP Palliative care for infants, children, adolescents, and their families. J Palliat Med, 2006.PMID 16430356
- [10]Shaw KL, Brook L, Mpundu-Kaambwa C, et al. The Spectrum of Children's Palliative Care Needs: a classification framework for children with life-limiting or life-threatening conditions. BMJ Support Palliat Care, 2015.PMID 24644200
- [11]Bluebond-Langner M, Beecham E, Candy B, et al Preferred place of death for children and young people with life-limiting and life-threatening conditions: a systematic review of the literature and recommendations for future inquiry and policy. Palliat Med, 2013.PMID 23612958