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Paeds Vivasfetal-neonatal-and-perinatal

Paeds Vivas · fetal-neonatal-and-perinatal

Neonatal palliative care and end-of-life decision-making — viva

Branching structured oral on neonatal palliative care and end-of-life decision-making: perinatal palliative care, the benefits-versus-burdens balance, withholding versus withdrawing, futility, the window of opportunity, symptom management and the ethics and court pathway for a disputed decision.

branching clinical structured oral2 min readVerification in progress

Target exams

RACP DCEMRCPCH ClinicalRCPSC Pediatrics
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Study tools

Target exams

RACP DCEMRCPCH ClinicalRCPSC Pediatrics
Prompt
NICU: a ventilated extreme preterm infant with progressive post-haemorrhagic hydrocephalus and cystic periventricular leukomalacia who cannot be weaned; the team agrees intensive care can no longer achieve its goal, but the parents insist on full escalation and a miracle.

Stem

Examiner-led viva on a disputed neonatal end-of-life scenario. [10]

Examiner: The team agrees intensive care can no longer help this baby. On what principle do you frame the recommendation? [10]

Strong answer: I frame it on the best-interests standard, which for a newborn who cannot decide for themselves weighs the benefits of continued life-sustaining treatment against its burdens from the baby's point of view. I weigh the chance of meaningful recovery against the cumulative suffering, loss of dignity and prolonged dying the baby is now bearing, and I bring a second neonatologist and the wider team to consensus before I bring a recommendation to the parents. [10]

Examiner: The parents say stopping the ventilator is worse than never starting it. How do you respond? [11]

Strong answer: I explain that withholding and withdrawing life-sustaining treatment are morally equivalent — the consensus position is that there is no ethical difference between never starting a non-beneficial treatment and stopping one already begun. Treating them differently biases practice toward overtreatment. Stopping is not abandonment; it is an active comfort procedure with symptom relief and the family present, and comfort care is intensified, never withdrawn. [11] [1]

Examiner: They insist on full escalation and a miracle. Is this futility? [10]

Strong answer: I distinguish physiological futility, a factual claim that a treatment cannot achieve its goal, from a value dispute about whether the resulting quality of life is worth living. Here the team and parents may broadly agree the prognosis is dire but disagree about the worth of the outcome — that is a value dispute, not pure physiological futility, so I do not declare futility unilaterally. I resolve it through shared deliberation, a second opinion and ethics input. [10]

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References5ShowHide
  1. [1]Catlin A, Carter B Creation of a neonatal end-of-life palliative care protocol. J Perinatol, 2002.PMID 11948380
  2. [4]Cortezzo DE, Meyer M Neonatal End-of-Life Symptom Management. Front Pediatr, 2020.PMID 33042931
  3. [10]Larcher V, Craig F, Bhogal K, Wilkinson D, Brierley J Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child, 2015.PMID 25802250
  4. [11]Truog RD, Campbell ML, Curtis JR, Haas CE, Luce JM, Rubenfeld GD, Rushton CH, Kaufman DC Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine. Crit Care Med, 2008.PMID 18431285
  5. [12]Wilkinson D The window of opportunity for treatment withdrawal. Arch Pediatr Adolesc Med, 2011.PMID 21383270
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