Paeds Cases · neurology-neurodisability-and-neuromuscular

Transition and advance care planning in neurodisability: Case

Clinical case of a seventeen-year-old young woman with severe cerebral palsy approaching the paediatric to adult boundary with no transition plan, covering the distinction between transition and transfer, the Got Transition Six Core Elements with the age milestones of twelve fourteen eighteen and twenty-one, the assessment of transition readiness with the TRAQ or Ready Steady Go, the named transition coordinator and the portable summary, the dangerous transition gap, and the parallel paediatric advance care planning conversation for a child with a life-limiting neurodisability across the four domains of goals of care ceiling of treatment resuscitation decisions and preferred place of care.