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Paeds Casesfetal-neonatal-and-perinatal

Paeds Cases · fetal-neonatal-and-perinatal

Neonatal palliative care and end-of-life decision-making — OSCE

OSCE station: leading a neonatal palliative care and comfort-plan conversation with the parents of a newborn with a life-limiting condition, applying the best-interests balance, building an overall comfort plan rather than an isolated resuscitation order, and identifying the ethics and court escalation pathway.

osce communication and management station2 min readVerification in progress

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
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Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
An extreme preterm infant with progressive post-haemorrhagic hydrocephalus cannot be weaned from ventilation; the team agrees intensive care can no longer achieve its goal, and the candidate must lead a goals-of-care and comfort-plan conversation with the parents.

Objectives

  1. Apply the best-interests balance of benefits against burdens to a neonatal end-of-life recommendation. [10]
  2. Run an honest, structured goals-of-care conversation with the parents of a newborn using a recognised framework. [1]
  3. Avoid the error of an isolated resuscitation decision and build an overall comfort and symptom plan. [11]
  4. Identify the escalation pathway to ethics and the courts for a genuine value dispute, and describe the comfort medications that support a planned withdrawal. [10] [4]
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References4ShowHide
  1. [1]Catlin A, Carter B Creation of a neonatal end-of-life palliative care protocol. J Perinatol, 2002.PMID 11948380
  2. [4]Cortezzo DE, Meyer M Neonatal End-of-Life Symptom Management. Front Pediatr, 2020.PMID 33042931
  3. [10]Larcher V, Craig F, Bhogal K, Wilkinson D, Brierley J Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child, 2015.PMID 25802250
  4. [11]Truog RD, Campbell ML, Curtis JR, Haas CE, Luce JM, Rubenfeld GD, Rushton CH, Kaufman DC Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine. Crit Care Med, 2008.PMID 18431285
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