Paeds Cases · fetal-neonatal-and-perinatal
Neonatal palliative care and end-of-life decision-making — OSCE
OSCE station: leading a neonatal palliative care and comfort-plan conversation with the parents of a newborn with a life-limiting condition, applying the best-interests balance, building an overall comfort plan rather than an isolated resuscitation order, and identifying the ethics and court escalation pathway.
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Target exams
MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
An extreme preterm infant with progressive post-haemorrhagic hydrocephalus cannot be weaned from ventilation; the team agrees intensive care can no longer achieve its goal, and the candidate must lead a goals-of-care and comfort-plan conversation with the parents.
Objectives
- Apply the best-interests balance of benefits against burdens to a neonatal end-of-life recommendation. [10]
- Run an honest, structured goals-of-care conversation with the parents of a newborn using a recognised framework. [1]
- Avoid the error of an isolated resuscitation decision and build an overall comfort and symptom plan. [11]
- Identify the escalation pathway to ethics and the courts for a genuine value dispute, and describe the comfort medications that support a planned withdrawal. [10] [4]
References4ShowHide
- [1]Catlin A, Carter B Creation of a neonatal end-of-life palliative care protocol. J Perinatol, 2002.PMID 11948380
- [4]Cortezzo DE, Meyer M Neonatal End-of-Life Symptom Management. Front Pediatr, 2020.PMID 33042931
- [10]Larcher V, Craig F, Bhogal K, Wilkinson D, Brierley J Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child, 2015.PMID 25802250
- [11]Truog RD, Campbell ML, Curtis JR, Haas CE, Luce JM, Rubenfeld GD, Rushton CH, Kaufman DC Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine. Crit Care Med, 2008.PMID 18431285