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Paeds Caseschild-safety-and-social-paediatrics

Paeds Cases · child-safety-and-social-paediatrics

Medical neglect and refusal of care — OSCE

OSCE communication-and-ethics station assessing a four-year-old with newly diagnosed acute lymphoblastic leukaemia whose loving parents refuse the standard chemotherapy protocol in favour of herbal and dietary treatment — testing the omission-versus-rejection definitions, the Diekema harm-principle threshold, the stepped negotiate-to-escalate management, and the conversion from negotiation to legal escalation when the threshold is met and the treatment window is closing.

osce communication and ethics4 min readVerification in progress

Target exams

RACP DWERACP DCEMRCPCH ClinicalMRCPCH TheoryRCPSC PediatricsABP General Pediatrics
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Target exams

RACP DWERACP DCEMRCPCH ClinicalMRCPCH TheoryRCPSC PediatricsABP General Pediatrics
Prompt
Liam is a four-year-old boy brought to the paediatric oncology day unit three days after a bone-marrow biopsy confirmed standard-risk acute lymphoblastic leukaemia. The treating team has explained that the standard chemotherapy protocol offers a cure rate above ninety per cent and that induction must begin within the next week. His parents, Sarah and David, have attended every appointment, understand the diagnosis, and are loving and attentive — they have no mental illness, substance use, or access barriers. Today they tell you they have decided to refuse chemotherapy and treat the cancer with herbal remedies, dietary changes, and prayer. They are frightened of the side effects they have read about online, and they believe the conventional treatment will do more harm than the disease. Liam is clinically stable but his counts show early marrow failure, and the oncologist warns that the induction window is narrow. The parents have signed a refusal-of-treatment form and are preparing to take Liam home.

Candidate information (2 minutes reading, 12 minutes station)

You are the general paediatric registrar in the oncology day unit. Liam, aged four, has been newly diagnosed with standard-risk acute lymphoblastic leukaemia. His parents, Sarah and David, have refused the standard chemotherapy protocol and plan to treat the cancer with herbal remedies and dietary changes. Read the presentation, then conduct the assessment and counselling. The examiner will role-play Sarah. [2] [9]

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You have read the opening of this case. The complete unit — every section and its primary-source references — is part of the Paediatrics Fellowship fellowship library.

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References5ShowHide
  1. [1]Diekema DS Parental refusals of medical treatment: the harm principle as threshold for state intervention. Theor Med Bioeth, 2004.PMID 15637945
  2. [2]Jenny C Recognizing and responding to medical neglect. Pediatrics, 2007.PMID 18055690
  3. [3]Boos SC, Fortin K Medical neglect. Pediatr Ann, 2014.PMID 25369577
  4. [9]Caruso Brown AE, Slutzky AR Refusal of treatment of childhood cancer: a systematic review. Pediatrics, 2017.PMID 29146622
  5. [12]Salter EK, Hester DM, Vinarcsik L, et al. Pediatric decision making: consensus recommendations. Pediatrics, 2023.PMID 37555276
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