Paeds Cases · professional-practice-and-evidence
Family-centred and child-rights-based care — OSCE
Communication and management OSCE station: delivering a family-centred, rights-based encounter with a child with special health care needs and a family who speak a language other than English.
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Study tools
Target exams
MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
A 9-year-old with a complex chronic illness is admitted for investigation; the parents speak a language other than English, ask you to tell them but not the child, and the child is drawing quietly and unconsulted.
Objectives
- Deliver the four PFCC core concepts and uphold the four UNCRC guiding principles in a real encounter. [1] [5]
- Arrange a professional interpreter and avoid using the child or a sibling as interpreter. [9]
- Elicit the child's own view at a developmentally right level and record it. [12]
- Manage the tension between a family's wish to withhold information and the child's right to accessible information. [5]
References6ShowHide
- [1]COMMITTEE ON HOSPITAL CARE, INSTITUTE FOR PATIENT- AND FAMILY-CENTERED CARE Patient- and family-centered care and the pediatrician's role. Pediatrics, 2012.PMID 22291118
- [5]Goldhagen JL, Shenoda S, Oberg C, Mercer R, Kadir A, Raman S Rights, justice, and equity: a global agenda for child health and wellbeing. Lancet Child Adolesc Health, 2020.PMID 31757760
- [6]Quaye AA, Coyne I, Söderbäck M, Hallström IK Children's active participation in decision-making processes during hospitalisation: An observational study. J Clin Nurs, 2019.PMID 31430412
- [9]Shields L, Nixon J Hospital care of children in four countries. J Adv Nurs, 2004.PMID 15009350
- [10]O'Connor S, Brenner M, Coyne I Family-centred care of children and young people in the acute hospital setting: A concept analysis. J Clin Nurs, 2019.PMID 31099444
- [12]Alderson P, Sutcliffe K, Curtis K Children as partners with adults in their medical care. Arch Dis Child, 2006.PMID 16399782