Paeds Cases · professional-practice-and-evidence
Best-interests decisions and treatment limitation — OSCE
OSCE station: leading a goals-of-care and treatment-limitation conversation with the family of a child with a progressive life-limiting condition, applying the best-interests balance and avoiding an isolated resuscitation decision.
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Target exams
MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
An 8-year-old with a progressive neurodegenerative disease is admitted with respiratory failure that will not reverse; the team agrees intensive care can no longer help, and the candidate must lead a goals-of-care conversation with the parents.
Objectives
- Apply the best-interests balance of benefits against burdens to a treatment-limitation recommendation. [1]
- Run an honest, structured goals-of-care conversation using a recognised framework. [10]
- Avoid the error of an isolated resuscitation decision and build an overall limitation and comfort plan. [4]
- Identify the escalation pathway to ethics and the courts for a genuine value dispute. [1] [12]
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- [1]Larcher V, Craig F, Bhogal K, Wilkinson D, Brierley J Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child, 2015.PMID 25802250
- [4]Truog RD, Campbell ML, Curtis JR, Haas CE, Luce JM, Rubenfeld GD Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College of Critical Care Medicine. Crit Care Med, 2008.PMID 18431285
- [9]Himelstein BP Palliative care for infants, children, adolescents, and their families. J Palliat Med, 2006.PMID 16430356
- [10]Morrison W, Clark JD, Lewis-Newby M, et al. Titrating Clinician Directiveness in Serious Pediatric Illness. Pediatrics, 2018.PMID 30385625
- [12]Freckelton I, McGregor S Refusal of potentially life-saving treatment for minors: The emerging international consensus by courts. J Law Med, 2016.PMID 30136557