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Paeds Casescardiology

Paeds Cases · cardiology

Explain an acute rheumatic fever diagnosis to a parent and plan the prophylaxis — OSCE

OSCE communication and shared-planning station: explaining a new diagnosis of acute rheumatic fever to the mother of a nine-year-old Aboriginal boy, outlining the benzathine penicillin prophylaxis regimen and duration in plain language, addressing the fear and the guilt, and framing the disease as preventable with adherence to the injections.

osce communication and shared decision-making4 min readVerification in progress

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
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Study tools

Target exams

MRCPCH ClinicalRACP DCERCPSC Pediatrics
Prompt
The mother of a nine-year-old Aboriginal boy, just told that his migratory arthritis and heart murmur have led to a diagnosis of acute rheumatic fever, is frightened and confused. She has been told her son will need injections every few weeks for years, and she fears the disease will shorten his life and that she somehow caused it by not treating his sore throat. She does not understand what rheumatic fever is, why the heart is involved, or why the injections must continue for so long. Counsel her.

Communication framework

Establish what the mother already understands and fears. Ask her to recount what she has been told and what she has heard about rheumatic fever, and acknowledge her fear directly. The guilt about not treating the sore throat and the fear of a shortened life are the two emotions you will spend the most time addressing, and you address them with the evidence that the sore throat is common and often mild, that the heart involvement is treatable, and that the injections are the single most effective protection for her son's future. Do not correct her before you have heard her. [5]

Explain acute rheumatic fever in plain language. Your son had a sore throat caused by a germ called a streptococcus. In some children, the body's defence system, which is trying to fight the germ, gets confused and attacks the body's own tissues, including the joints and the heart. That is why his knees and ankles were swollen, and that is why we heard a murmur — the heart valve is a little inflamed, like a graze on the skin, and it is leaking slightly. The good news is that the inflammation settles with treatment, and the joints recover fully. [5]

Address the guilt directly and honestly. This is not your fault. The sore throat that caused this is one of the commonest childhood illnesses, and most children fight it off without any problem. There was no way for you to know that this particular sore throat would lead to rheumatic fever. What matters now is not what happened before, but what we do from here — and the protection we can give your son's heart is very effective. [3]

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References3ShowHide
  1. [1]Gewitz MH, Baltimore RS, Tani LY, et al. Revision of the Jones Criteria for the diagnosis of acute rheumatic fever in the era of Doppler echocardiography: a scientific statement from the American Heart Association. Circulation, 2015.PMID 25908771
  2. [3]Ralph AP, Noonan S, Wade V, et al. The 2020 Australian guideline for prevention, diagnosis and management of acute rheumatic fever and rheumatic heart disease. Med J Aust, 2021.PMID 33190309
  3. [5]Carapetis JR, McDonald M, Wilson NJ. Acute rheumatic fever. Lancet, 2005.PMID 16005340
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